UK leading on patient-centric precision medicine research

A novel system which will allow rare disease patients and their caregivers to add additional information about themselves to research databases is being developed by Sano Genetics in collaboration with Zetta Genomics and Genomics England.

The system will add an important layer of patient derived information to the groundbreaking precision medicine research being carried out through Genomics England.

The information provided by individuals may be reported by participants directly, for example daily symptom tracking, or by a device such as a watch that measures activity or sleep.